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OrphaNews, the newsletter for the rare disease community. OrphaNews is a freely available, twice-monthly electronic newsletter presenting an overview of scientific and political news about rare diseases and orphan drugs. OrphaNews is produced by Orphanet is intended for the rare disease community. It is produced with the support of Fondation IPSEN, under the aegis of Fondation de France, and the French Muscular Dystrophy Association (AFM).
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