Innovation Bootcamp in Rare Diseases
From 04 to 05 November 2019
At : Leuven, Belgium
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From 04 to 05 November 2019
At : Leuven, Belgium
From 06 to 08 November 2019
At : Madrid, Spain
From 11 to 13 November 2019
At : Rishon Lezion, Israel.
From 13 to 17 November 2019
At : Havana, Cuba
From 21 to 22 November 2019
At : Strasbourg, France
From 19 to 23 January 2020
At : London, UK
From 08 to 11 March 2020
At : Limassol, Cyprus.
From 11 to 14 March 2020
At : Berlin, Germany.
From 05 November to 05 October 2019
At : Nijmegen, Netherlands
From 04 to 05 November 2019
At : Leuven, Belgium
The Laboratory for Thrombosis Reasearch at the University of KU Leuven is organising the second edition of the “Innovation Bootcamp on Rare Diseases” in Leuven.
The target audience includes researchers, clinicians, pharma, policy makers and patient organisations dealing with rare diseases.
The preliminary program consists of the following sessions:
1. Landscape of Rare Diseases and Orphan Drugs in 2019
2. Innovative Entrepreneurship and health economics in RD
3a. Advanced Therapy Medicinal Products
3b. Pediatric RD
4. Raising awareness in RD
5a. Oncologic RD
5b. Metabolic RD
6. Interdisciplinarity and paradigm rethinking
7. Orphan drug access and affordability issues
Registrations for this Bootcamp are open.
Please send your CV and cover letter to with the reference 2019-US14-004 to:
Please send your CV and cover letter to with the reference 2019-US14-010 to:
On November 9 and 10 in San Francisco a Rare disease festival is organised featuring films backed by rare disease advocacy organisations or pharmaceutical companies.
A book entitled Altered Inheritance: CRISPR and the Ethics of Human Genome Editing, on the ethical considerations around CRISPR has been recently published. One chapter in particular focuses on the possible applications of CRISPR for rare diseases and the case of Huntington's disease.