Endo-ERN Registries Symposium
From 23 to 24 April 2024
At : Milan, Italy
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From 23 to 24 April 2024
At : Milan, Italy
From 29 April to 01 May 2024
At : Philadelphia, USA
From 15 to 17 May 2024
At : Brussels, Belgium (hybrid)
From 16 to 19 May 2024
At : Beach Rotana, Abu Dhabi, UAE
From 23 to 25 May 2024
At : Shanghai, China
From 27 to 28 May 2024
At : Bari, Italy (hybrid)
On 29 May 2024
At : Geneva, Switzerland
From 31 May to 01 June 2024
At : Berlin, Germany
From 01 to 04 June 2024
At : Berlin, Germany (hybrid)
From 01 to 04 June 2024
At : Berlin, Germany
From 07 to 08 June 2024
At : Los Angeles, USA
On 08 June 2024
At : Los Angeles, USA
From 12 to 14 June 2024
At : Paris, France
From 18 to 21 September 2024
At : Ljubljana, Slovenia
From 26 to 28 September 2024
At : Kansas City, Missouri, USA
From 26-28 September 2024, Global Genes will be holding their annual Week in RARE, featuring the RARE Health Equity Forum and RARE Advocacy Summit.
In preparation for the event, Global Genes has issued a call for special interest session proposals. Submissions are welcome for both traditional presentations and panel discussions. Learn more here.
From 22 to 25 October 2024
At : Barcelona, Spain
From 31 October to 01 November 2024
At : Boston, United States
From 05 to 07 November 2025
At : Prague, Czech Republic
The European Reference Networks often organise educational webinars and other online meetings for their members and/or other interested parties. Below is a list of some upcoming events that may be of interest to our readers:
The EJP-RD is holding workshops aiming at training ERN researchers and clinicians in relevant innovative themes with a cross-ERN added value. These 2-days ERN workshops are open to interested persons (clinicians/scientists) affiliated to ERNs or Affiliated Partner Institutions.
Training themes may include innovative research methodologies, diagnostic research methodologies, interdisciplinary treatment approaches, such as gene therapy and transplantation, etc. Topics have to be proposed by the ERNs or by investigators belonging to EJP RD beneficiary institutions. Registrations are now open for several workshops.
From 11 to 12 April 2024
At : Florence, Italy
Thanks to an educational grant by the EJP RD, the Paediatric Rheumatology European Association (PReS) is organising its first course on Non-Infectious Childhood Chronic Uveitis (NCCU), to take place in Florence, Italy from 11-12 April 2024. The objective of the course is to improve participants' knowledge on NCCU, with a focus on diagnosis, clinical management and treatment. More information is available here.
From 01 May to 19 June 2024
At : Online
In May and June 2024, Beacon for Rare Diseases will be organising a new free online training series titled "Decoding Diagnostics." The course will consist of a series of webinars and discussion sessions on varied aspects of genetic diagnosis, including methods and applications, and accessing, interpreting, and supporting results. While primarily aimed at rare disease patient groups, anyone looking to improve their knowledge on diagnostics is welcome to attend.
From 27 to 28 June 2024
At : Hanover, Germany
From 27-28 June 2024, the ERN RARE-LIVER will be holding their 5th annual workshop on research in autoimmune hepatitis in Hanover, Germany. The two-day event will feature updates on ongoing clinical project, diagnostic and predictive improvements, and the understanding of AIH pathogenesis, as well as keynote lectures and a workshop on data curation and AI approaches. During registration, participants are asked to specify whether they would like to propose a new project, present an update on an ongoing project, or present preliminary research data. The workshop preceeds the 20th HepNet Symposium at Hanover Medical School, a national symposium with special sessions in English which may be of interest to participants.
The Medical Research Future Fund has several grant opportunities open for submissions which are relevant to rare diseases. These opportunities may be of particular interest to teams based in Australia. They are:
SMA Europe has launched their biennial call for research proposals on spinal muscular atrophy (SMA). This call aims to support projects which address the needs of people living with SMA, and which demonstrate a clear pathway to impact in the short or longer term. Particular priority will be given to projects concentrating on the following areas:
Two types of awards are available, namely operating grants and postdoctoral fellowships. To be eligible for an operating grant, principle investigators must be a professional or faculty member at an appropriate educational, medical or research institution or SME biotech, preferably located in Europe, among other criteria. The maximum amount for an operating grant is €150,000.
Postdoctoral fellowships are open to applicants already belonging to a laboratory, preferably in Europe, and must hold a doctorate degree. These grants must be within European norms and will not exceed €150,000.
Applications for both types of awards must be submitted before 13th May 2024 at 17h00 CET.
The Innovative Health Initiative (IHI) has announced the launch of IHI call 6 and IHI call 7.
Call 6 is a two-stage call for proposals with the following topics:
The initial submission deadline for call 6 is 16 April 2024 at 17:00 CET.
Call 7 is a single-stage call for proposals with the following topics:
The deadline for call 7 is 22 May 2024 at 17:00 CET.
The Ataxia Charlevoix-Saguenay Foundation has opened their annual call for proposals on ARSACS research. The purpose of these grants is to encourage and accelerate the development of a treatment for Autosomal Recessive Spastic Ataxia of Charlevoix-Saguenay (ARSACS). Both fundamental and clinical research projects are accepted.
Funding is available as grants of up to $100,000 CAN for a 12-month period, and with the possibility of renewal. An additional Seed Grant of $25,000 is available for projects who have not previously received funding from the Foundation.
Initial applications must be submitted by 24th May 2024, with successful applicants being informed in August. More information is available here.
Orphanet is looking to hire a Scientific project manager: Nomenclature and terminology alignments. The job listing is available here.
If interested, please send your CV and cover letter to jobs.orphanet@inserm.fr.
Orphanet is hiring for an Administrative management assistant. The job listing is available here.
If interested, please send your CV and cover letter to jobs.orphanet@inserm.fr.
Orphanet is looking to hire a Scientific monitoring and content acquisition officer. The job listing is available here.
If interested, please send your CV and cover letter to jobs.orphanet@inserm.fr.