The 2014 European Conference on Rare Diseases & Orphan Products announces a wide-ranging and packed programme
It’s Berlin’s turn to play host to the 7th edition of the biennial European Conference on Rare Diseases & Orphan Products (8-10 May 2014) for which a packed programme was announced this month. This conference, organised by the European Organisation for Rare Diseases (EURORDIS) and DIA Europe, is the only event dedicated to providing the state-of-the-art of activities in the field of rare diseases, in areas as far ranging as research, medical and social care, and access to orphan drugs. It provides a unique forum for the rare disease community, bringing together actors from across all diseases and stakeholder groups in Europe and beyond and providing a perfect opportunity to exchange knowledge and experience.
The latest edition of this highly successful conference, which welcomes around 700 stakeholders every two years, hopes to demonstrate the importance of EU actions in the field of rare diseases and to take stock of the evolution in the field. The organisers also aim to sustain the dynamic at European level in the field by considering the future perspectives of a wide range of topics which make up the pieces of the rare diseases puzzle.
The conference programme, now available online (For further details), features parallel sessions covering the following main themes : Improving healthcare services, Knowledge generation and dissemination, Research from discovery to patients, State of the art and innovative practices in orphan products, Emerging concepts and future policies, and Beyond medical care. These sessions will provide the opportunity to share real experiences and best practices, and aim to stimulate awareness, debate and networking in an approach tailored to ensuring that everyone benefits from the lessons learned over the past two years.
The conference will be held in English and interpretation services will be provided for the Opening & Plenary Sessions (French, Spanish, German, Polish and Russian). The day before the main conference will once again be dedicated to capacity-building sessions for patient and patients’ representatives in addition to tutorials for Industry and academic participants. Plenty of networking opportunities have been integrated into the programme to ensure that participants come away with new contacts to add to their address books. Poster sessions will also provide a great opportunity for exchange of information and know-how around the main themes.
The organisers encourage all stakeholders in the rare disease community, patient representatives, policy makers, researchers, members of the Industry, payers and regulators to participate at the conference and make it a success. The programme for the conference is now available online (For further details) and registration is open (Register here).
Register now for the opportunity to be a part of this exciting event. This is the place to be for the most comprehensive and up-to-date knowledge on rare diseases and orphan products.