ERN Board of Member states meeting: consolidation and expansion of the networks
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New abstracts translated in Japanese
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New abstracts translated in Japanese
ReadSetting international standards for cross-border exchange of patients’ health data
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ReadImportance of clinical guidelines for genetic counseling practice following a NIPT positive results
ReadOrphaNews, The Newsletter for the Rare Diseases Community.
OrphaNews is supported by the European Commission through the pilot projet 'Rare 2030 - a participatory foresight study policy-making rare diseases' (PP-1-2-2018-Rare 2030).
Editor-in-chief: Ana Rath
Associate Editor: Charlotte Rodwell
Editor: Florent Simon
Editor for Scientific Content: Agathe Franck
Scientific monitoring: Hélène Jagline
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Editorial Board: Victoria Hedley, Yann Le Cam, Charlotte Rodwell, Anna Bucsics, Franz Schaefer, Ivana Cattaneo
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