Rare Digital Disease Day 2021 : Key Highlights
ReadSpotlight
The Rare 2030 Recommendations – Steering the Rare Disease community towards a brighter future
ReadOrphanet News
Orphanet Report Series : Expert reviewers for Orphanet in 2020
ReadERN News
ERN : European Reference Networks: challenges and opportunities
ReadERN : Rare communicable diseases and the EURaDMoG feasibility study
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ERN-Eurobloodnet : A new publication on advances in prenatal diagnosis of monogenic diseases with coelocentesis
ReadERN eUROGEN : Clinical Exchange Programme 2021-2022 launched
ReadERN eUROGEN : A new publication providing clinical overview of ERN eUROGEN
ReadERN Transplantchild : Exchange Programme 2021-2022 launched
ReadERN RARE-LIVER : Upcoming educational webinars
ReadERN RARE-LIVER : A new publication on COVID-19 in patients with autoimmune liver diseases
ReadERN RARE-LIVER : SARS-CoV2 vaccines and other vaccinations for patients with rare liver diseases available in 12
ReadERN RARE-LIVER : A new publication on hepatobiliary phenotypes of adults with alpha-1 antitrypsin deficiency
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ERN-RND : New leaflet for patients on Muscle tightness & stiffness – “spasticity” in ataxia
ReadVASCERN : Rare Disease Day Videos
ReadVASCERN : VASCA WG CPMS case discussions continue
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