Adoption of the EC’s Strategy for the rights of persons with disabilities 2021-2030
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Rare Diseases International : WHO Collaborative Global Network for Rare Diseases (CGN4RD)
ReadERN News
ERN EuroBloodNet : Newborn screening for sickle cell disease in Belgium
ReadERN EuroBloodNet : Thrombotic microangiopathies webinars received official CME accreditation
ReadERN eUROGEN : New article published about cinical overview of ERN eUROGEN
ReadERN-EYE : New position statement on genomic testing in rare eye diseases
ReadERN-EYE : Replay of the webinar on "Papilloedema & COVID vaccination" available
ReadERN GENTURIS : Supporting partner collaboration agreements with 5 UK clinical experts
ReadERN ITHACA : Call for Collaboration on the correlation between intellectual disability and cutaneous skin mosaicism
ReadERN ITHACA : Call for collaboration on TRIP12-associated neurodevelopmental disorder
ReadERN RARE-LIVER : New patient information leaflet on progressive familial intrahepatic cholestasis
ReadERN-RND : New webinar "Better Conversations - Communication partner training for language led dementias"
ReadERN-RND : Survey on educational needs in in Rare Neurological Diseases
ReadERN-RND : New publication on research priorities for rare neurological diseases: a representative view of patient
ReadERN-Skin : Key achievements in 2020 online
ReadVASCERN : Recording of the webinar on Infections and lymphedema now available
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