Results of the 2022 User Satisfaction Survey of OrphaNews
ReadSummary of Edition of 05 October 2022
Editorial
Political news
Registries and biobanks
Lessons learned from the IRD-PT registry
ReadBioinformatics and biotechnology
Quality assessment of mobile apps for people with rare diseases
ReadScientific news
And also...
Credits
OrphaNews, The Newsletter for the Rare Diseases Community.
The production of OrphaNews is realised with the support of Fondation IPSEN, under the aegis of Fondation de France.
Editor-in-chief: Ana Rath
Associate Editor: Charlotte Rodwell
Editor: Nour Zargouni
Editor for Scientific Content: Henri Jautrou
Scientific monitoring: Hélène Jagline
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Editorial Board: Victoria Hedley, Yann Le Cam, Charlotte Rodwell, Anna Bucsics, Ivana Cattaneo, Daria Julkowska, Hélène Dollfus, Alexis Arzimanoglou, Holm Graessner, Henri Jautrou
ADVISORY EDITORIAL BOARD
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