RDI Annual Meeting
Date: 4 June, 2017
Venue: Barcelona, Spain
At the meeting, you will be able to know more about the latest actions to put rare diseases on the global health agenda. In particular, feedback from the first Rare Disease Policy Event in Geneva in February and the launch of the NGO Committee for Rare Diseases at the United Nations in New York last November. This will also be an opportunity to get an update on rare disease and orphan drug activities in Latin America, North America, Asia and Africa. For further information
15 th International Conference on Rare Diseases „Rare Diseases - Open Your Heart And Mind”
Date: 29 June – 2 July 2017
Venue: Białobrzegi, Poland
This conference aims to draw the attention of the public to the needs of patients suffering from diseases. For further information
2017 IPPF Scientific Conference
Date: 21 - 23 June 2017
Venue: Lübeck, Germany
Organized by the International Pemphigus & Pemphigoid Foundation and the University of Lübeck Department of Dermatology, this conference will bring together clinical and scientific experts in the field of autoimmune bullous disorders. The conference is an opportunity for physicians and scientists from around the world to come together under the common goal of studying pemphigus and pemphigoid. For further information
11th European Cytogenetics Conference 2017
Date: 1-4 July 2017
Venue: Florence, Italy
For further information
3rd World Conference on Congenital Disorders of Glycosylation
Date: 15 - 16 July 2017
Venue: Leuven, Belgium
The "World Conference on Congenital Disorders of Glycosylation (WCCDG) for Families and Professionals” is a biennial event fruitfully designed in collaboration with leading experts in the field of CDG: families and professionals work together to exchange knowledge, experiences, needs and perspectives. For further information
9th International Dup15q Alliance Family Conference: Navigating the Future (2017)
Date: 24 - 26 July 2017
Venue: California, United States
Sessions will be held on the latest research, treatment and therapies for those with dup15q syndrome, with views from clinicians, providers and parents. For further information
ITP Conference 2017
Date: 28 - 30 July 2017
Venue: Arizona, United States
This three-day program is not only an important update on information about immune thrombocytopenia (ITP), but it is also a chance to meet others affected by ITP. You will also have the opportunity to ask your questions to PDSA's medical advisors, some of the most experienced ITP doctors in the world. For further information
10th ISNS‐Asia Pacific Regional Neonatal Screening Meeting
Date: 24‐26 August, 2017
Venue: Ulaanbataar, Mongolia
This meeting brings together (para)medical professionals concerned with the neonatal screening for congenital (metabolic) conditions and will discuss the latest development concerning screening methodology, diagnostics and treatment. For further information
International Conference on Chronic Diseases
Date: 31 Aug – 1 September 2017
Place: Brussels, Belgium
International Conference on Chronic Diseases is intended to urge more noteworthy collaboration to offer a forum that will connect worldwide gathering of people for the exchange of thoughts and points of view for better comprehension of beginning, advancement, clinical and interpretation science to convey potential cure for Chronic Diseases. For further information
28th European Meeting on Dysmorphology
Date: 6 – 8, September 2017
Place: Le Bischenberg
For further information
The 6th World Congress of Clinical Safety
Date: 6 – 8, September 2017
Place: Rome, Italy
The congress covers a wide range of safety topics, such as clinical safety (patient safety, medication safety, medical device safety), infectious disease outbreak, disaster healthcare, clinical crisis governance, environmental health & safety, food safety, and other related safety subjects. For further information
Shaping the Future of Pediatrics
Date: 20 – 22, September 2017
Place: Rome, Italy
It is dedicated to pediatricians, researchers, nurses, patients, entrepreneurs and specialists in the field of innovation in pediatrics, especially in Europe. For further information
International Ataxia Research Conference IARC
Date: 27-30 September, 2017
Venue: Pisa, Italy
GoFAR, FARA and Ataxia UK in collaboration host what will be the second edition IARC where the latest research on 'Friedreich's ataxia will be presented and discussed. SCA and other progressive ataxias will also be presented and discussed. Plenary sessions will include the progress in the field of gene therapy, animal and cellular models, approaches pharmacologists and their development and clinical research. For further information
2017 Rare Neuro-Immune Disorders Symposium
Date: 20 September, 2017
Venue: Ohio, United States
An education and advocacy conference for families, caregivers and individuals diagnosed with Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica Spectrum Disorder (NMOSD), Optic Neuritis (ON), and Transverse Myelitis (including the subtype Acute Flaccid Myelitis). For further information
5th Annual International Erdheim-Chester Disease Medical Symposium
Date: 26 October, 2017
Venue: New York, United States
The ECD Medical Symposium is the only medical conference focused on uniting medical professionals from around the world to share scientific findings, patient outcomes and case studies, and new developments in Erdheim-Chester disease. The annual meeting facilitates collaboration among physicians specializing in different therapies interested in learning more about ECD. Abstracts for presentations are due August 1, 2017. Email Jessica Corkran at jessica.corkran@erdheim-chester.org for more information. For further information
5th Annual International Erdheim-Chester Disease Patient & Family Gathering
Date: 27 October, 2017
Venue: New York, United States
The ECD Patient & Family gathering is the only conference focused on uniting those affected by Erdheim-Chester Disease from around the world to increase their knowledge of ECD, learn how to advocate for themselves in a healthcare system often unaware of their illness, and promote fellowship among patients and caregivers. Please email questions to Jessica Corkran at Jessica.corkran@erdheim-chester.org. For further information
14th International Conference on Thalassaemia & Haemoglobinopathies and 16th TIF International Conference for Patients & Parents
Date: 17 - 19 November, 2017
Venue: Thessaloniki, Greece
For further information
