Rare film festival
On 11 February 2020
At : London-United Kingdom
On 11 February 2020
At : London-United Kingdom
From 28 to 30 April 2020
At : Roma-Italy
From 30 May to 01 June 2020
At : Basel, Switzerland
France Televisions covered ERN-EYE and the virtual clinic, the Clinical Patient Management System (CPMS), one of the 16 video stories in line with the "EU Protects" campaign, a collaboration between the European Commission and an association of the European regional TV broadcasters (CIRCOM). France Televisions journalists worked on two sites of the ERN-EYE, in Riga, and at the ERN coordinating center, in Strasbourg, where they filmed patients whose case were examined by the virtual clinic. CIRCOM journalists produced videos on ordinary European heroes who help protect their fellow citizens across the continent. Fifteen broadcasters created 16 stories showcasing the actions of the EU through the work of these citizen heroes in the fields of security, society, the environment and health.
The European Union campaign, the "EU protects", received a Silver award at the Cannes Corporate Film festival. The EU campaign featured ERNs and was the initiative of the European Commission one year ago. The award was received at Cannes in the category "Integrated Communication: films and videos as part of a larger communication campaign".
Here is the testimony of Íñigo, who received a heart transplant two years ago, at La Paz University Hospital, a member of the ERN Transplantchild. With the support of the ERN, Íñigo launched a video in Spanish to call for crosstalk and promote collaboration among peadiatric ERNs. Íñigo was also joigned by Ana Duato, a UNICEF Ambassador, well known for her interest in the issue of children suffering from rare and complex diseases, and the work of ERNs.
Please send your CV and cover letter with the reference 2019-US14-013 to:
• Chafik ABDELGHANI
• E-mail : jobs.orphanet@inserm.fr
• Tel : +33 (0)1 56 53 81 41
Please send your CV and cover letter with the reference 2019-US14-012 to:
• Chafik ABDELGHANI
• E-mail : jobs.orphanet@inserm.fr
• Tel : +33 (0)1 56 53 81 41
Please send your CV and cover letter with the reference 2019-US14-011 to:
• Chafik ABDELGHANI
• E-mail : jobs.orphanet@inserm.fr
• Tel : +33 (0)1 56 53 81 37
Please send your CV and cover letter to:
• Ana RATH
• E-mail : jobs.orphanet@inserm.fr
• Tel : +33 (0)1 56 53 81 37