ECRD Vienna 2018 - programme and speakers announced!
The European Conference on Rare Diseases & Orphan Products (ECRD) will be held in Vienna the 10-12 May 2018 and the theme is ‘Rare Diseases 360° – collaborative strategies to leave no-one behind’. The theme reinforces the quality of the event for the rare disease community in Europe, and brings together and facilitates effective policy discussions between all rare disease stakeholders. It gives the opportunity to discuss current issues with experts and to develop solutions on how to improve the lives of the estimated 30 million people living with a rare disease in Europe and 300 million worldwide.
The programme of the conference will cover different topics such as research, healthcare, social care, public health policies, and support at European and international levels.
The conference will focus on six themes, that will be discussed by participants during the event.
- Quality of life
- Global rare equity
- The digital patient
- Structuring research and diagnosis
- Economical perspectives in rare diseases
- Breakthrough medicines
The aims are to set out next steps on how to shape better research, policies and services that improve patients’ access to the best possible medicines, healthcare and social policies, and services. The last 20 years of research have shown great progress in science and medicine and it is crucial to ensure that no patients living with a rare disease are left behind.
The ECRD Vienna speakers will cover every topic of rare disease patients, and represent all rare diseases, across borders. Here is a sample of the numerous speakers attending the event:
- Kristina Larsson - European Medicines Agency (EMA)
- Brian O'Connor - European Connected Health Alliance
- Tapani Piha - Délégation Générale de la Santé (DGS), European Commission (EC)
- Ana Rath - Orphanet
- Heather Etchevers - Inserm
- Violeta Stoyanova-Beninska - Member Committee for Orphan Medicinal Products (COMP); European Medicines Agency (EMA)
- Chris Austin IRDiRC - National Institute of Health (NIH)/National Center for Advancing Translational Sciences (NCATS)
- Marc Hanauer - Orphanet
- Petra Wilson - Health Connect Partners
- Makoto Suematsu- Agency for Medical Research and Development (AMED)
- Paul Lasko - CIHR
- Matthew Harold - Pfizer
- Ana Lucia Arellano - International Disability Alliance
Full programme and speakers available here
