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Summary of Edition of 26 March 2020

Orphanet is collecting expert recommendations and services concerning COVID-19 and rare diseases

Reminder: Orphanet Emergency Guidelines

European Commission launches “COVID-19 Clinical Management Support System”

Information concerning Kawasaki disease

European Union Institutions, Bodies, and Agencies

European Reference Networks

Learned Societies

Patient organisations

Expert networks outside of Europe

Vaccination Info Service

Covid-19 : Vaccination des 6 mois-4 ans

Le cas particulier des contre-indications non listées

Vaccination et maladies rares: statuts et contre-indications

Vaccination: Officialisation des maladies rares

Lettres Info-Covid & Info-Infections

Vaccination aux patients vulnérables à très haut risque

Campagne de vaccination avancée de 15 jours

Pompe & MPS1 (GSD 2 & Mucopolysaccharidose type 1) : Résultats en matière de sécurité et préférences des patients

Autisme et TND (Trouble du neurodéveloppement)

Immunodépression sévère : Nouvelles recommandations du COSV

Filières de Santé Maladies Rares (France)

Sociétes savantes (France)

Ressources (autres)

Credits

OrphaNews, The Newsletter for the Rare Diseases Community.
OrphaNews is supported by the European Commission through the pilot projet 'Rare 2030 - a participatory foresight study policy-making rare diseases' (PP-1-2-2018-Rare 2030).
Editor-in-chief: Ana Rath
Associate Editor: Charlotte Rodwell
Editor: Josiane Kijigo
Editor for Scientific Content: Claire Bernard
Scientific monitoring: Hélène Jagline
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Editorial Board: Victoria Hedley, Yann Le Cam, Charlotte Rodwell, Anna Bucsics, Irene Mathijssen, Daria Julkowska, Franz Schaefer, Ivana Cattaneo

ADVISORY EDITORIAL BOARD
Orphanet Partner Country Representatives: Romi Armando (Argentina), Kristine Hovhannesyan (Armenia), Hugh Dawkins (Australia), Till Voigtlander (Austria), Rumen Stefanov (Bulgaria), Micheil Innes (Canada), Ingeborg Barisic (Croatia), Marios Antoniades (Chyprus), Milan Macek (Czech Republic), Vallo Tillmann (Estonia), Helena Kääriäinen (Finland), Susanne Morlot (Germany), Eileen Treacy (Ireland), Annick Raas-Rothschild (Israel), Bruno Dallapiccola (Italy), Atsuhiko Kawamoto (Japan), Ieva Malniece (Latvia), Birute Tumiene (Lithuania), Abdelaziz Sefiani (Morocco), Gert-Jan van Ommen (Netherlands), Stein Are Aksnes (Norway), Krystyna Chrzanowska (Poland), Mario Carreira (Portugal), Cristina Rusu (Romania), Dragica Radojkovic (Serbia), Laszlo Kovacs (Slovakia), Luca Lovrecic (Slovenia), Francesc Palau (Spain), Rula Zain (Sweden), Loredana D'Amato Sizonenko (Switzerland), Dorra H’mida-Ben Brahim (Tunisia), Sarah Stevens (UK)
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Disclaimer: The content of newsletter represents the views of the Editorial Board only and is his/her sole responsibility; it cannot be considered to reflect the views of the European Commission and/or the Consumers, Health, Agriculture and Food Executive Agency or any other body of the European Union. The European Commission and the Agency do not accept any responsibility for use that may be made of the information it contains.

Photo credit : Serimedis (unless otherwise stated)