Legal notice

Site publication

INSERM US14 - Orphanet
Rare Disease Plateform
96 rue Didot, 75014 Paris
France

Tél. : +33 1 56 53 81 37
Email : media.orphanet@inserm.fr

INSERM is a French national public establishment

Editor-in-Chief : Ana RATH
Photo credits : Serimedis http://www.serimedis.inserm.fr/ (unless otherwise stated)

Site design and production

ADDICTIC
www.addictic.fr
RCS Tours B 498 295 039
16, rue des Montils 37520 LA RICHE

FRANCE


Tél. : (+33)2 47 36 90 61

Site hosting

ADDICTIC using the OVH platform
RCS Roubaix-Tourcoing B 424 761 419
Headquarters: 140 Quai du Sartel
59100 ROUBAIX - France

Personal data protection

Data is collected solely to establish a commercial and professional contact with clients. Personal data is conserved by INSERM US14, Orphanet for a reasonable period of time.

By providing your email via the subscription form, you have agreed to receive the newsletter "OrphaNews International" electronically, and to be contacted with satisfaction surveys concerning this publication. Your data, email and date of subscription has been recorded in our newsletter publishing tool and will not be transmitted to third parties other than Mailjet, the service we use to send our email campaigns. By subscribing you agree for your email address to be transferred to Mailjet for use according to their privacy policy and terms and conditions. Mailjet will store data concerning your activity in relation to the newsletter (for example, if you open the newsletter, the links you click in the email of the newsletter, etc).

Any person who does not provided all the obligatory required information requested in the forms of this site (*Obligatory fields) will not be able to validate the form and will not be able to enter into contact with INSERM US14, Orphanet.

In accordance with the French law N° 78-17, “Informatique et Libertés” (“Information Technology and Freedoms”) of 6th January 1978, you have the right to access, rectify, modify, oppose or delete any data concerning you. You can exercise this right by writing to: INSERM - Orphanet US 14, 96 rue Didot, 75014 Paris, France or media.orphanet@inserm.fr.

Notice concerning security measures

In order to assure the security of this site and guarantee access to all users, this website uses programs to monitor the traffic on the site, to identify non-authorised attempts to access the site or change information on the site, or any other action that could damage the site. Unauthorised attempts to download data or alter data with the aim of causing damage, or in general any attack on the availability and integrity of this site, are strictly prohibited and sanctioned by law. Under article 323-1 of French penal law, fraudulently accessing or remaining on all or part of an automatised data processing system (i.e. a website) is punishable by two years in prison and a fine of 30'000€. Under article 323-3 of the same law, the action of fraudulently introducing data into an automatised data processing system or fraudulently deleting or altering the data this system contains is punishable by 5 years in prison and a 75'000€ fine.

Cookies

This website uses cookies. These files, saved on your computer for a duration of 7 days, allow us to ease your access to the services that we propose.

The cookies on the site do not contain data that could identify you personally, and they are designed to be used solely by INSERM US14, Orphanet.

We inform you that you can choose not to save these "cookies" by configuring your browser to refuse them: please find more details here www.cnil.fr.

You can see more information about Cookies on the dedicated page.

Links to third-party sites

INSERM US14, Orphanet provides links to third-party websites in the newsletter OrphaNews and on the site www.orpha.net.
INSERM US14, Orphanet cannot be held responsible for the content of these sites and the use which could be made of these sites by users.

Disclaimer


The content of newsletter represents the views of the Editorial Board only and is his/her sole responsibility; it cannot be considered to reflect the views of its funders.